versão On-line ISSN 0379-8577
Curationis vol.32 no.4 Pretoria 2009
T MolefeI; SE DumaII
IMSc. Division of Nursing and Midwifery, School of Health and Rehabilitation Sciences University of Cape Town
IIPhD. Division of Nursing and Midwifery, School of Health and Rehabilitation Sciences, University of Cape Town
The central phenomenon of interest to the authors was the experiences of Batswana women who have been diagnosed with both HIV/AIDS and cervical cancer. They wanted to know how these women and their families coped with the burden of the two 'fatal' diseases. This interest was brought about by the current surge in cervical cancer cases in the country, and the relationship between the two diseases. There is scant literature on the experiences of women with the dual diagnosis of HIV/AIDS and cervical cancer.
The purpose of the study was to explore the experiences of Batswana women who are diagnosed with both HIV/AIDS and cervical cancer. The research question was 'What are the experiences of Batswana women diagnosed with both HIV/AIDS and cervical cancer?' A phenomenological descriptive qualitative research design was therefore appropriate to answer the research question.
Semi-structured interviews and field notes were used to collect data. One-to-one interviews were conducted with six women diagnosed with the two diseases. Both convenience and purposive sampling techniques were used in selection of participants.
The seven procedural steps proposed by Collaizi ( 1978) were utilized in data analysis as the study was based on the phenomenology approach. The findings revealed that HIV/AIDS and cervical cancer are chronic illnesses that can instill chronic emotional pain. Reactions to diagnosis with these diseases include pain, fear or intense sadness. Coping with these conditions can be facilitated by different strategies such as acceptance, having hope, support from others and positive thinking. Support can come from children, family members, informal or formal groups and health service providers.
Kev words: Batswana women; cervical cancer; HIV/ AIDS; chronic emotional pain
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AHLSTROM, G 2007: Experiences of loss and chronic sorrow in persons with severe chronic illness, Journal of Nursing and Health Care of Chronic illness in Association with Journal of Clinical Nursing [Online], [ Links ] Vol. 16, No. 30, pp76-83. Available: http://www.blackwell-synergy.com [10th Dec 2007].
ASHING-GIWA, KT; KAGAWA-SINGERM; PADELLA, GV; TEJERO, JS; CHHABRA, R; MATINEZ, L & TUCKER, BM 2004: The impact of cervical cancer and dysplasia: A qualitative, multiethnic study. Psycho-oncology [Online], [ Links ] Vol. 13, No. 10, pp709-728. Available: http://web.ebscohost.com [2nd June 2007].
BAIGIS-SMITH, J & MCGUIRE, DB 1995: Healthcare needs of HIV-infected persons in hospital, outpatient, home and long-time care. JANAC [Online], [ Links ] Vol. 6, No. 6. Available: http://www.sciencedirect.com [ 16th October 2007].
BOTSWANA HEALTH STATISTICS REPORT 2003: Central Statistics Office. Ministry of Health. Gaborone. [ Links ]
BOTSWANA NATIONAL CANCER REGISTRY REPORT 2004: Community Health services Division, Ministry of Health. Gaborone. [ Links ]
BOTSWANA NATIONAL CANCER REGISTRY REPORT 2005: Community Health services Division, Ministry of Health. Gaborone. [ Links ]
CARR, RL & GRAMLING LF 2004: Stigma: A health barrier for women with HIV/AIDS. Journal of the Nurses association in AIDS care [Online], [ Links ] Vol. 15, No. 5, pp30-39. Available: http://www.sciencedirect.com [26th September 2007].
DABASH, R; VAJPAYEE, J; JACOB, M; DZUBA, I; LAL, N; BRADLEY, J & PRASAD, LB 2005: A strategic assessment of cervical cancer prevention and treatment services in 3 districts of Uttar Pradesh, India. Journal of reproductive Health [Online], [ Links ] Vol.2 (no. 11) Available: http://www.reproductive-health-joumal.com/content/2/1/11 [October 5th 2006].
DE GROOT, JM; MAH, K; FYLES, A; WINTON, S; GREENWOOD, S; DEPETRILLOS, AD & DEVINS, GM 2005: The psychosocial impact of cervical cancer among affected women and their partners. International Journal of Gynaecological Cancer. [ Links ] [Online], volume 15, pp918-925. Available: http://www.blackwell-synergy.com [26th Feb 2007].
DENZIN, NK & LINCOLN, YS 1998: Strategies of qualitative inquiry. Thousands Oak. Sage Publications. [ Links ]
EDWARDS, LE 2006: Perceived social support & HIV/AIDS medication adherence among African American women. Qualitative Health Research. [ Links ] [Online], volume 16 (Issue 5), pp679-691. Available: http://qhr.sagepub.com [23rd Feb 2007].
HAILE, BL; LANDRUM, PA; KORTABA, JA & TRIMBLE, D 2002: Inner strength among HIV-infected women: Nurses can make a difference. Journal of the association of nurses in AIDS care. [ Links ] [Online], Vol. 13, No. 3, pp74-80. Available: http://www.sciencedirect.com [26 September 2007].
HOLLOWAY, I 2005: Qualitative research in health care. Berkshire. McGraw-Hill Education. [ Links ]
HOLLOWAY, I & WHEELER, S 2002: Qualitative research in nursing. 2nd Edition. Oxford. Blackwell Publishing Company. [ Links ]
JENNINGS, KM 1997: Getting a Pap smear: Focus group responses of African American & Latina Women. Oncology Nursing Forum. [ Links ] [Online], Vol.24 (no.5) pp827-835.
JIN, H; ATKINSON, H; YU, X; HEATEN, RK; SHI, C; MARCOTTE, TP; YOUNG, C; SADEK, J; WU Z & GRAND, I 2006: Depression and suicidality in HIV/AIDS in China. Journal of affective disorders. [ Links ] [Online], Vol. 94, pp269-275. Available: http://www.sciencedirect.com [17th October 2007].
KARASZ, A; MCKEE, MD & ROYBAL, K 2003: Women's experiences of abnormal cervical cytology: Illness representations, care processes and outcomes. Annals of family medicine [Online], [ Links ] Vol. 1, No. 4, pp196-202. Available: http://www.sciencedirect.com [2nd June 2007].
KLEE, M; THRANOW, I & MACHIN, D 2000: Life after radiotherapy: The psychological effects experienced by women treated for advanced stages of cervical cancer. Gynaecologic Oncology [Online], [ Links ] Vol. 76, pp5-13. Available:http://www.sciencedirect.com [16th October 2007].
LYONS, MA& SHELTON, MM 2004: Psychosocial impact of cancer in low-income rural/urban women; phase II. Journal of Rural Nursing and Health Care. [ Links ] [Online], Volume 4 (Issue 2). Available: http://www.rno.org/journal/issues/vol-4/issue-2/Lyons_article.htm [10th Feb 2006].
MABOKO, E 2005: The experience of African women diagnosed with HIV/ AIDS and cervical cancer. Available: http://etd.unisa.ac.za/ETD-db/thesis/available/etd-09222005-110555/unstricted/06chapter5.pdf [Feb 28th 2007]. [ Links ]
MABOKO, E & MAVUNDLA, TR 2006: The experiences of African women diagnosed with both HIV/AIDS and cervical cancer. African Journal of Nursing and Midwifery. Vol. 8, No. 1. 38-42 [ Links ]
MARCENKO, MO & SAMOST, L 1999: Living with HIV/AIDS: The voices of HIV positive mothers. Available: http://web.ebscohost.com/ehost/detail?vid=l&hid=103&sid=...[Feb23rd 2007]. [ Links ]
MASO, DL; SERRAINO, D & FRANCESHI, S 2001: Epidemiology of AIDS-related tumors in developed and developing countries. European Journal of Cancer. [ Links ] [Online], ppl 188-1201. Available: http://www.scince direct.com [16th October 2007].
MILES, MB & HUBERMAN, MA 1994: Qualitative data analysis. London. Sage Publications. [ Links ]
MUNHALL, PL 2007: Nursing Research: A qualitative perspective. 4th ed. Boston: Jones and Bartlett Publishers. [ Links ]
NEUMAN, WL 2004: Basics of social research; Qualitative and quantitative approaches. Boston. Pearson Education, Inc. [ Links ]
OTTO, SE 2001: Oncology Nursing. 4th ed. St Louis. Mosby Inc. [ Links ]
PARKIN, DM; BRAY, F; FERLAY, J & PISANI, P 2005: Global Cancer Statistics 2002, Cancer Journal for Clinician. [ Links ] [Online], volume 55, pp 74-108. Available: http://CAonline.AMcancerSoc.org [8th August 2006].
PELCASTRE-VILLAFUERTE, BE; TIRADO-GOMEZ, LL; MOHAR-BETANCOURT, A & LOPEZ-CERVANTES, M 2007: Cervical Cancer: A Qualitative study on subjectivity, family, gender & health services. Reproductive Health [Online], [ Links ] Vol. 4, No. 3. Available: http://www.reproductive-health-journal.com/content/4/1/2 [5th Dec 2007].
POLIT, DE & BECK, CT 2004: Nursing research; Principles and methods. 7th ed. Philadelphia: Lippincott Williams & Wilkins. [ Links ]
POLIT, DE & BECK, CT 2006: Essentials of nursing research; Methods, appraisal and utilization. 6th ed. Philadelphia: Lippincott Williams & Wilkins. [ Links ]
POLIT, DE; BECK, CT & HUNGLER, BP 2001: Essentials of nursing research; Methods, appraisal and utilization. 5th ed. Philadelphia: Lippincott Williams & Wilkins. [ Links ]
POLIT, DF & HUNGLER, BP 1993: Essentials of nursing research; Methods, appraisals and utilization. 3rd ed. Philadelphia. Lippincott Raven Publishers. [ Links ]
POLIT, DF & HUNGLER, BP 1997: Essentials of nursing research; Methods, appraisals and utilization. Philadelphia. J.B. Lippincott Company. [ Links ]
SANDELOWSKI, M 1995: Focus on qualitative research: Sample size in qualitative research. [ Links ] [Online], volume 18, ppl79-183. Available: http://www.med.umich.edu/csp/course%20materials/fall%202005/forman-focus [27th March 2007].
SIMBAYI, LC; KALICHMAN, S; STREBEL, A; CLOETE, A; HENDA, N & MQEKETO, A 2007: Internalized stigma, discrimination and depression among men and women living with HIV/AIDS in Cape Town. Social Science & Medicine [Online], [ Links ] Vol. 64, ppl823-1831. Available: http://www.sciencedirect.com [26 September 2007].
WHO 2005: Project on palliative care. [ Links ] [Online]. Available: http://www.who.int/cancer/palliative/africanproject/en/endex.html [28th Feb 2007].
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