SciELO - Scientific Electronic Library Online

 
vol.51 issue3Measuring Change in Activity Participation of Mental Health Care Users Attending an Occupational Therapy Programme in Rural South AfricaCaregivers' Perception of their Role in Early Childhood Development and Stimulation Programmes in the Early Childhood Development Phase within a Sub-Saharan African Context: An Integrative Review author indexsubject indexarticles search
Home Pagealphabetic serial listing  

Services on Demand

Article

Indicators

Related links

  • On index processCited by Google
  • On index processSimilars in Google

Share


South African Journal of Occupational Therapy

On-line version ISSN 2310-3833
Print version ISSN 0038-2337

Abstract

SAVAGE, Annika; RENCKEN, Gina  and  GURAYAH, Thavanesi. "I will take my flip-flops, put them on and walk to church": Understanding quality of life of children with cerebral palsy in a rural setting. S. Afr. j. occup. ther. [online]. 2021, vol.51, n.3, pp.74-83. ISSN 2310-3833.  http://dx.doi.org/10.17159/2310-3833/2021/vol51n3a9.

INTRODUCTION: Cerebral Palsy (CP) is a chronic, debilitating condition affecting most spheres of a person's life. This study aimed to explore the perceived factors impacting the quality of life (QOL) of a selected group of children with CP living in the rural Umzinyathi district of KZN, South AfricaMETHODOLOGY: The study had a qualitative, phenomenological design with purposeful sampling to recruit children with CP and their parents. Ten individual interviews were conducted, two with children with CP and eight with parent-proxies. One focus group was also conducted with the parent-proxies. Thematic analysis was used to interpret the dataFINDINGS: Three themes emerged from the data: Physical wellbeing, Activity participation, and Family and community. These themes encompassed the lived experiences of the children with CP, as well as the perceived factors that impacted on their QOL. Each theme was further broken down into subthemes, with a total of fourteen subthemesCONCLUSION: QOL in rural areas is a complex and multi-faceted construct. Understanding the factors that impacted the children's QOL, will enable occupational therapists to offer client-centred meaningful interventions. When aiming to improve the QOL of children with CP in rural areas, awareness campaigns, anti-stigma messages and support for caregivers are vital

Keywords : quality of life; cerebral palsy; rural occupational therapy; client centred intervention; caregiver support.

        · text in English     · English ( pdf )

 

Creative Commons License All the contents of this journal, except where otherwise noted, is licensed under a Creative Commons Attribution License