Resumo

TEMBE, S'thembiso C.; KOCH, Lindsay; FRANZSEN, Denise  e  WITT, Patricia de. The Health-Related Quality of Life of South African Paediatric In-patients with Cancer. S. Afr. j. occup. ther. [online]. 2021, vol.51, n.1, pp.44-53. ISSN 2310-3833.  http://dx.doi.org/10.17159/2310-3833/2021/vol51n1a7.

INTRODUCTION: In the South African public health system, children with cancer are admitted to specialised oncology units for the duration of their treatment. These units therefore become the children's temporary living environment for varying periods of time, which may disrupt their participation in daily activities and consequently their health-related quality of life (HRQoLAIM: The purpose of the study was to determine the HRQoL of children admitted with cancer from both their own and their parents' perspectiveMETHODOLOGY: A quantitative, descriptive, cross-sectional study was conducted at a tertiary hospital in Gauteng with a specialist oncology unit. Structured interviews were conducted with the children aged 8-12 years using the PedsQL^TM Generic Core Scale (4.0) and Cancer Module (3.0). The parent's perspective was explored using the Parents proxy forms of both instrumentsRESULTS: Twenty-five children and their parents participated in the study. Most children in the sample were males with Leukaemia. All children and parents reported the children's functioning at an intermediate level which suggests that these children may be at risk for HRQoL deficits. Children's HRQoL was impacted by psychosocial functioning and change in schooling on the PedsQL^TM Generic Core Scale (4.0), while parents felt physical functioning played a greater role in determining the child's HRQoL. On the PedsQL^TM Cancer Module (3.0) both the children and parents felt that 'procedural anxiety' had an effect, although from the parents' perspective, 'worry' accounted for the greatest deficits in their children's HRQoLCONCLUSION: This study indicates that occupational disruption is experienced by children during the long-term treatment of cancer. It is suggested that occupational therapists use available instruments to monitor and provide support for the effect of an impaired HRQoL

Palavras-chave : Health-related quality of life; Cancer; Children; Parental perspective; PedsQL™ Generic Core Scale (4.0) and Cancer Module (3.0)..

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