SciELO - Scientific Electronic Library Online

vol.49 número1Experiences and perceptions of Return to Work (RTW) by clients with major depressive disorder in an extended sick leave periodRoles, rituals and emotional regulation of rugby players at different competitive levels índice de autoresíndice de assuntospesquisa de artigos
Home Pagelista alfabética de periódicos  

Serviços Personalizados



Links relacionados

  • Em processo de indexaçãoCitado por Google
  • Em processo de indexaçãoSimilares em Google


South African Journal of Occupational Therapy

versão On-line ISSN 2310-3833
versão impressa ISSN 0038-2337


REDDY, Gwen; FEWSTER, Deborah L  e  GURAYAH, Thavanesi. Parents' voices: experiences and coping as a parent of a child with autism spectrum disorder. S. Afr. j. occup. ther. [online]. 2019, vol.49, n.1, pp.43-50. ISSN 2310-3833.

INTRODUCTION: Autism Spectrum Disorder (ASD) requires a lifetime commitment of care and imposes significant stressors on families. This study aimed to understand the lived experiences and coping strategies of parents with children diagnosed with ASD. The study addressed one of the objectives of a larger project METHODS: An exploratory, qualitative study using purposive sampling to recruit parents of Children with ASD was used. Six individual interviews and one dyad interview provided the data for this study. Data were interpreted using thematic analysis FINDINGS: The study identified two major themes namely experiences of ASD and coping with ASD. Dealing with ASD was characterised by significant challenges associated with resource limitations, poor guidance from health professionals, protracted diagnostic processes, reduced awareness of ASD and stigma for families. Parents were resilient and empowered themselves to cope with the tough journey, with support systems providing a buffer to families. Parents identified support, resources and awareness as pivotal needs. Positive ramifications from parenting a child with ASD were the development of positive personality traits, increased spiritual faith and a greater appreciation of life. The study emphasised the need for increased resources and support for families to cushion their experiences of ASD

Palavras-chave : Autism; lived experiences; coping strategies; parents; challenges.

        · texto em Inglês     · Inglês ( pdf )


Creative Commons License Todo o conteúdo deste periódico, exceto onde está identificado, está licenciado sob uma Licença Creative Commons