SciELO - Scientific Electronic Library Online

 
vol.10Barriers and facilitators to participation for children and adolescents with disabilities in low- and middle-income countries - A scoping review'Satan is holding your tongue back': Stuttering as moral failure author indexsubject indexarticles search
Home Pagealphabetic serial listing  

Services on Demand

Article

Indicators

Related links

  • On index processCited by Google
  • On index processSimilars in Google

Share


African Journal of Disability (Online)

On-line version ISSN 2226-7220
Print version ISSN 2223-9170

Abstract

LIKUMBO, Naomi; VILLIERS, Tania de  and  KYRIACOS, Una. Malawian mothers' experiences of raising children living with albinism: A qualitative descriptive study. Afr. j. disabil. (Online) [online]. 2021, vol.10, pp.1-11. ISSN 2226-7220.  http://dx.doi.org/10.4102/ajod.v10i0.693.

BACKGROUND: Albinism in humans is characterised by a reduced amount of pigment (melanin) present in the skin, hair follicles and the eye; approximately 7000-10 000 Malawians of all ages are affected. Children with these features face extreme forms of human rights abuses, even death. OBJECTIVES: This study aims to describe Malawian mothers' experiences, perceptions and understanding of raising children with albinism (CWA). METHODS: The study was conducted in 2018 using a qualitative descriptive design, with purposive sampling and voluntary participation. Mothers, 18 years and older, who had given birth to a CWA and who attended the dermatology clinic of a local public hospital participated. An interview guide used during standardised, open-ended interviews was translated from English to Chichewa using forward and backward translation. Interviews were conducted in Chichewa, audio recorded, transcribed and forward and back translated from English to Chichewa. Thematic data analysis was employed. RESULTS: The mean age of participants (N = 10) was 33 years; two had albinism. Emerging themes confirmed the existence of myths and stereotypes regarding albinism but from the mothers' perspectives. : (1) some experiences of emotional pain, initially, but also love and acceptance of their children, despite adverse reactions of others; (2) their experiences of stigmatisation of their children and themselves, and of intended harm to their children, and (3) their own lack of knowledge and understanding of albinism. CONCLUSION: In our limited study, mothers' self-reported experiences of raising CWA in Malawi highlight the need for educational programmes on albinism at national level, particularly for families with a CWA, health professionals and educators.

Keywords : albinism; albinism in Africa; albinism in Malawi; albinism killings; children living with albinism; maternal experiences; oculocutaneous albinism; stigma and albinism.

        · text in English     · English ( pdf )

 

Creative Commons License All the contents of this journal, except where otherwise noted, is licensed under a Creative Commons Attribution License